It’s not long to go until this year’s Rare Disease Day on Monday 28 February 2022. The day is always a fantastic opportunity to spread awareness of Behçet’s and to increase understanding of living life with a rare condition.
Here are a few ways you can get involved!
- Throughout the day we will be sharing various posts about Behçet’s on our Instagram, Facebook and Twitter, and we’d really appreciate it if you could give us a share, like and/or retweet.
- Download and share our diagram of Behçet’s symptoms. https://behcetsuk.org/diagram-of-behcets-symptoms/ We have created versions suitable for Instagram, Facebook and Twitter.
- Submit your Behçet’s story to the Rare Repository https://www.raredisease.org.uk/rdd2022/rare-repository/ Choose a window and click on the name underneath to read other people’s rare disease stories. Do let us know if you submit your Behçet’s story and we will promote it on our social media.
- Share your experiences of Behçet’s on your social media on the day. It could be a video, image, blog post or just a sentence or two to describe your experiences. When sharing anything on social media for Rare Disease Day, remember to tag us @BehcetsUK so that we see your posts. Use the hashtags #RareDiseaseDay and/or #RareDiseaseDay2022 and/or #LightUpForRare We will endeavour to share a few of your Instagram posts on our Instagram Stories and we will retweet some of your tweets on our Twitter.
- Light up for rare! In an effort of global solidarity, light or decorate your home or workplace with the Rare Disease Day colours at 7 PM your local time on 28 February 2022. Find out more at https://www.rarediseaseday.org/downloads/lightupforrare/ Don’t forget to share photos of your lights on social media and remember to use the hashtag #LightUpForRare
You can find out more about Rare Disease Day at rarediseaseday.org where you can download Rare Disease Day posts for your social media and other marketing materials.
Follow @RareDiseaseUK on social media to see their rare disease videos. A new one will be released every day from 24-27 February. On Rare Disease Day itself their digital news item, ‘Shining a light on rare conditions’, produced in partnership with ITN Productions Industry News will launch – keep an eye on their social media to watch and share.
Many thanks for your help! If you have any queries or would like to let us know your plans for Rare Disease Day, email us at info@behcetsuk.org