The Government’s Neighbourhood Health programme aims to move care closer to home, improve care coordination and make services easier for people to navigate.…
Category: News
Support over the summer
Some of our support groups are taking a break over the summer months. However, please remember that support is always…
Behçet’s UK becomes an affiliate charity of Our Future Health
Behçet’s UK has joined as an affiliate charity partner of the UK’s largest health research programme. As an affiliate charity,…
Congratulations, Janet Mather BEM
We are immensely proud of our incredible former Chair, Jan Mather, on being awarded a British Empire Medal (BEM) in…
Wednesday 20 May will be this year’s International Behçet’s Awareness Day!
#InternationalBehcetsAwarenessDay takes place on the 20th of May every year. It’s the perfect opportunity to raise more awareness of Behçet’s,…
Future for Rare survey
The Future for Rare survey by Genetic Alliance UK is designed to capture a comprehensive picture of the current experiences…
Bank Holiday Weekend Office Hours
Our admin office will close at 3pm on Thursday 2 April 2026 and will be open again from Monday 6…
Rare Disease Day 2026: Get involved!
Did you know there are 3.5 million people in the UK alone that are affected by a rare disease? This…
ADAPT Research Trial: Do Pilates and Tai Chi reduce fatigue in people with rheumatological disease?
Researchers are looking for volunteers to take part in a trial investigating the effect of Pilates and Tai Chi online…
Take part in a survey for Rare Disease Day 2026
Rare Disease Day 2026 (RDD 2026) is the global annual awareness day for genetic, rare and undiagnosed conditions and Genetic…