Behçet’s UK (formerly Behçet's Syndrome Society)

Caring for all affected by this rare, complex and lifelong condition; promoting research into the cause, effects, treatment and management of Behçet’s

National Behçet's Centres of Excellence

Find out everything about the National Behçet's Centres of Excellence (CoE) run by NHS England
Clinic details and contact information
Referral process
CoE history and overview
The Behçet's Patient Support Service
Useful videos

2020 Quality of Life Survey

Working in association, the Behçet’s Patients Centres we are launching the 2020 Quality of Life Survey for patients and members diagnosed with Behçet’s

Coronavirus (COVID-19)

Follow the above link to view our statement regarding the current Coronavirus (COVID-19) outbreak.
This will be updated regularly, as and when information becomes available.

Recent Initiatives:

Behçet's UK News

Bike for Behçet’s, Run for the Rare!

From 18th July around 17 people are taking part in a challenge in aid of Behçet’s UK. They will be cycling or running the distance between the three Behçet’s Centres of Excellence from the safety of their local areas – that’s 226 miles! Either individually, or as part of a team, each person involved will […]

Amazon Smile App for iOS and Android

For those who shop at Amazon you can donate to Behçet’s UK while you shop at no extra cost with Amazon Smile and now this is available on both the Android and iOS apps. Instructions for setting up the apps can be found here: More information about Amazon Smile can be found here […]

Coronavirus (COVID-19)

Bags for Behçet’s

Our Trustee Catherine O’Hara has kindly made some beautiful and unique crochet bags which she is selling to raise funds for Behçet’s UK. Catherine, who has Behçet’s, says that “crocheting has helped in the recovery from flares and in counteracting the anxiety of feeling ill and being unable to do much until the flare subsides. […]