Behçet’s UK (formerly Behçet's Syndrome Society)

Caring for all affected by this rare, complex and lifelong condition; promoting research into the cause, effects, treatment and management of Behçet’s

National Behçet's Centres of Excellence

Find out everything about the National Behçet's Centres of Excellence (CoE) run by NHS England
Including:
Clinic details and contact information
Referral process
CoE history and overview
The Behçet's Patient Support Service
Useful videos

2020 Quality of Life Survey

The 2020 survey has now closed.

Thank you to everyone who took the time to complete the survey, we appreciate your continued support. The data is currently being analysed and we look forward to sharing the results with you in due course.

Coronavirus (COVID-19)

Follow the above link to view our statement regarding the current Coronavirus (COVID-19) outbreak.
This will be updated regularly, as and when information becomes available.

Recent Initiatives:

Behçet's UK News

Coronavirus (COVID-19)

Rare Disease COVID-19 Survey for groups in Northern Ireland

The Rare Disease Team at Queen’s University Belfast have launched a COVID-19 survey which can be accessed at the following link:  https://www.smartsurvey.co.uk/s/COVID19_RD_Groups/ They are interested in hearing the views of how the pandemic has impacted groups supporting those with a rare disease.  Results of this survey will be used to help improve the accessibility of […]

Petition to extend the furlough scheme for high-risk people who can’t safely return to work

Those with conditions like Behçet’s shouldn’t have to choose between protecting their health or their income. Please sign and share the petition to extend the furlough scheme for high-risk people who can’t safely return to work: https://petition.parliament.uk/petitions/330279 Thank you

Genetic Alliance Patient Experience Survey

The new ‘Rare Disease Framework’, to replace the current UK Strategy for Rare Diseases, will shortly be launched. We all hope that it will help improve inequality across the country, diagnosis, research and coordination of care to name a few. Genetic Alliance UK need to understand (baseline now) the detail of your experiences as a […]