Medicine and Me meetings aim to provide an outline of current best practice and future updates of important conditions and…
News
Rare Disease Day 2021
This Sunday 28th February will be Rare Disease Day 2021. It’s a great opportunity to spread awareness of Behçet’s and…
Behçet’s Syndrome in children and young people in the United Kingdom & Republic of Ireland
Dr Clare Pain (Alder Hey), together with colleagues, have had their research published, as an advanced article in Rheumatology, Oxford Academic, charting the incidence and…
Patient Telemedicine Survey
The COVID–19 Global Rheumatology Alliance are asking for adult patients with a rheumatic disease or the parents/caregivers of a child…
Scams – Be Aware
Sadly, scammers are trying to take advantage of people’s worries and uncertainty about the pandemic, especially those who are alone,…
Exploring medication adherence in Behçet’s Disease in the context of COVID-19: qualitative study
PhD Researcher, Behçet’s UK member, and Behçet’s patient Fay Sweeting is working with Dr. Emily Arden-Close at Bournemouth University to…
COVID-19 Patient Survey
Behçet’s Patients Support have been asked by their colleagues at the London Centre of Excellence to help with another survey.…
‘Your Behçet’s Stories’ – New patient interview series launched
We’re excited to launch our new series of patient experience interviews! For the first in our series of ‘Your Behçet’s…
Voices from rare disease groups across NI
Improvements are needed to support people living and working with a rare disease in Northern Ireland, as current rare disease…
Shop for Behçet’s this Christmas
With the new lockdown now in place in England, and other restrictions in Wales, Scotland and Northern Ireland, it’s likely…