Behçet’s Patients Support have been asked by their colleagues at the London Centre of Excellence to help with another survey.…
News
‘Your Behçet’s Stories’ – New patient interview series launched
We’re excited to launch our new series of patient experience interviews! For the first in our series of ‘Your Behçet’s…
Voices from rare disease groups across NI
Improvements are needed to support people living and working with a rare disease in Northern Ireland, as current rare disease…
Shop for Behçet’s this Christmas
With the new lockdown now in place in England, and other restrictions in Wales, Scotland and Northern Ireland, it’s likely…
Behçet’s UK Annual Report 2020
Our Annual Report for 2020, which has been independently examined and submitted to the Charities Commission can now be viewed…
Christmas cards in aid of Behçet’s UK
2020 has been a very difficult year for so many, with everyone finding their own way of coping with the…
Rare Disease COVID-19 Survey for groups in Northern Ireland
The Rare Disease Team at Queen’s University Belfast have launched a COVID-19 survey which can be accessed at the following…
Petition to extend the furlough scheme for high-risk people who can’t safely return to work
Those with conditions like Behçet’s shouldn’t have to choose between protecting their health or their income. Please sign and share…
Genetic Alliance Patient Experience Survey
The new ‘Rare Disease Framework’, to replace the current UK Strategy for Rare Diseases, will shortly be launched. We all…
Bike for Behçet’s, Run for the Rare!
From 18th July around 17 people are taking part in a challenge in aid of Behçet’s UK. They will be…