2020 has been a very difficult year for so many, with everyone finding their own way of coping with the…
News
Rare Disease COVID-19 Survey for groups in Northern Ireland
The Rare Disease Team at Queen’s University Belfast have launched a COVID-19 survey which can be accessed at the following…
Petition to extend the furlough scheme for high-risk people who can’t safely return to work
Those with conditions like Behçet’s shouldn’t have to choose between protecting their health or their income. Please sign and share…
Genetic Alliance Patient Experience Survey
The new ‘Rare Disease Framework’, to replace the current UK Strategy for Rare Diseases, will shortly be launched. We all…
Bike for Behçet’s, Run for the Rare!
From 18th July around 17 people are taking part in a challenge in aid of Behçet’s UK. They will be…
Amazon Smile App for iOS and Android
For those who shop at Amazon you can donate to Behçet’s UK while you shop at no extra cost with…
Bags for Behçet’s
Our Trustee Catherine O’Hara has kindly made some beautiful and unique crochet bags which she is selling to raise funds…
Do you have any ink cartridges to recycle?
Unfortunately, from October 2020 the Freepost envelopes for recycling ink cartridges through Recycle 4 Charity will no longer be able…
RAIRDA Survey – Please share your experiences during the Covid-19 outbreak
UPDATE 15/05/20 This survey has now closed but you can still contact RAIRDA to share your experiences. The Rare Autoimmune…
Ideas for fundraising whilst at home
As a small charity with no government funding we rely on donations to allow us to continue our work in…