Improvements are needed to support people living and working with a rare disease in Northern Ireland, as current rare disease…
Category: General
Shop for Behçet’s this Christmas
With the new lockdown now in place in England, and other restrictions in Wales, Scotland and Northern Ireland, it’s likely…
Christmas cards in aid of Behçet’s UK
2020 has been a very difficult year for so many, with everyone finding their own way of coping with the…
Rare Disease COVID-19 Survey for groups in Northern Ireland
The Rare Disease Team at Queen’s University Belfast have launched a COVID-19 survey which can be accessed at the following…
Bags for Behçet’s
Our Trustee Catherine O’Hara has kindly made some beautiful and unique crochet bags which she is selling to raise funds…
Ideas for fundraising whilst at home
As a small charity with no government funding we rely on donations to allow us to continue our work in…
Rare Disease Day
Today, February 29th, is Rare Disease Day. Rare diseases and conditions affect 300 million people worldwide. Behçet’s (also known as…
Bio Behçet’s Trial
The Bio Behçet’s trial The Bio Behçet’s trial aims to understand more about the different ways of treating Behçet’s. It…
Help create a national register for people with rare rheumatic diseases
Please see this ‘Patient and Public Involvement’ poster. PPI is now mandated for all medical research that affects patients. If…
Dragonfly TV: Casting call for patients
A medical science series is being made for the BBC. In this programme, they want to showcase the best, latest…