Researchers from the University of the West of England need your help.
RAISE has been looking at what support is needed by people living with RAIRDs and whether an intervention can be designed that addresses these needs.
In the first part of the study they held six face-to-face focus groups with community groups in Bristol, Weston-super Mare and Leeds. The aim of these was to explore the support needs and potential design of an NHS intervention for patients with RAIRDs. They collaborated with patient research partners and community organisations to hear from people who don’t usually participate in research. The analysis from these focus groups helped to inform the questions for the survey.
They are currently recruiting for the second part of the project – a UK wide survey to ask people what they’d like to see in an support intervention from their NHS teams in terms of content and structure. Behçet’s is currently under represented in the responses so they would love to hear more about people’s experiences of living with Behçet’s.
The survey is open now and until 31 March 2026. Please follow this link to take part. The survey should take you around 20-30 minutes to complete.
If you have any queries, please email the team – a link to their email addresses can be found on the survey page.
Thank you