Our Future Health: Your participation matters

Our Future Health: Your participation matters

Behçet’s UK is now an affiliate charity of Our Future Health, the UK’s largest health research programme, delivered in partnership with the NHS. This pioneering initiative aims to improve the prevention, early diagnosis and treatment of disease.

For people living with Behçet’s, this is one of the most important opportunities our community has had to contribute to future Behçet’s research. Every participant helps move us closer to better understanding, improved treatments and better outcomes.

Why your participation matters

Every person with Behçet’s who joins Our Future Health strengthens our voice as a rare disease community. The more people who take part, the greater our ability to:

  • Encourage more research by showing there is a strong Behçet’s community ready to support new studies.
  • Improve understanding of Behçet’s by combining this research with our forthcoming Patient Registry to build a clearer picture of how Behçet’s develops over time.
  • Support more personalised healthcare by helping researchers understand how genetic, environmental and lifestyle factors affect people’s health.

What does taking part involve?

The programme starts with a secure online health questionnaire. It asks about:

  • Basic information, including your age, sex, height, weight and ethnicity.
  • Your education and employment.
  • Lifestyle factors, such as exercise, screen time, social activities and alcohol consumption.
  • Your family’s medical history.
  • Your own health history, including diagnoses, medications and current symptoms.

You will then be invited to attend a short appointment at one of more than 500 locations across the UK. At the appointment, you will provide a small blood sample and have a few simple physical measurements taken.

Take part today

If you are aged 18 or over and live in the UK, you can help shape the future of Behçet’s research.

By joining Our Future Health, you will be contributing to one of the UK’s most ambitious health research programmes while helping to ensure Behçet’s is represented in research that could benefit generations to come.

To get started, click the button below. When you reach the Our Future Health website, select Join Our Future Health to begin your registration.

Every person who takes part helps strengthen Behçet’s research and increases our understanding of this rare condition. By joining today, you could help improve diagnosis, treatment and care for future generations.

Want to learn more before registering?