Did you know Behçet’s is one of over 7,000 identified rare conditions?
This year’s Rare Disease Day will take place on Friday 28 February 2025. The theme for this year is #MoreThanYouCanImagine to highlight the complexity of living with a rare condition.
If you’d like to get involved in this year’s activities, here are a few ways you can do so, some of which only take a few minutes:
- Share your experiences of Behçet’s on your social media on the day. It could be a video, image, blog post or just a sentence or two to describe your experiences. When sharing anything on social media for Rare Disease Day, remember to tag us @BehcetsUK so that we see your posts. Use the hashtags #RareDiseaseDay and/or #RareDiseaseDay2025 and/or #MoreThanYouCanImagine
- On the day we will be sharing a few posts about Behçet’s on our Instagram and Facebook and we’d really appreciate it if you could give us a share and/or a like.
- Download the social media assets from the official UK campaign by Genetic Alliance here, or the Rare Disease Day official social media posts and banners from the international Rare Disease Day website here.
- Wear a Behçet’s UK pin badge, or use your Behçet’s tote bag, and start a conversation with those around you about Behçet’s. Order official Behçet’s UK merchandise from our website to help raise both awareness and funds for Behçet’s UK.
- Check out the Genetic Alliance UK anthology of rare experiences, which will be published on the day and it will include various artworks and creative submissions from the rare disease community.
- Take a look at the calendar of Rare Disease Day events around the globe.
Thank you for your help! If you have any queries or would like to let us know your plans for Rare Disease Day, email us at info@behcetsuk.org There’s also more information on the Rare Disease UK website