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Category: News
General Election 2024 – Pledge for People with Genetic, Rare and Undiagnosed Conditions
For #GE2024 we want candidates to pledge to help to improve awareness of genetic, rare and undiagnosed conditions including for…
Behçet’s and Employment: NEW guide available
Staying in or returning to work is likely to be one of the most important goals for someone with Behçet’s.…
Monday 20 May 2024 is International Behçet’s Awareness Day
Do you have any plans for this year’s #InternationalBehcetsAwarenessDay on Monday 20 May? It’s not too late to get involved.…
Behçet’s UK Northern Ireland Mini-Conference April 2024: Registration now open
Registration is now open for the Behçet’s UK Northern Ireland Mini-Conference on Saturday 20 April 2024.
Get involved in Rare Disease Day 2024!
Did you know that 300 million people worldwide are living with a rare disease? This year’s Rare Disease Day will…
RNIB Connect Radio interview – listen now!
Our chair Tony Thornburn recently talked to Amelia from RNIB Connect Radio to discuss Behçet’s and how it affects the…
Secukinumab in Behçet’s trial
If you have Behçet’s, you could be eligible to take part in this clinical trial. Secukinumab in Behçet’s trial aim…
Do you know a child or young person with Behçet’s?
Behçet’s UK are hoping to run a creative project involving children and young people focusing on their lived experience of…
Cost of Living Crisis – Useful Resources
Same but Different, a not for profit community interest company, have been working on a project supported by the National…