The Northern Ireland Rare Disease Partnership has a couple of upcoming events which may be of interest to those of…
Category: News
CONCORD Focus Group
COordiNated Care Of Rare Diseases (CONCORD) The CONCORD research team would like to find a few more people to take…
CONCORD Research Project – Survey Responses Needed!
Genetic Alliance UK are delighted to announce that their CONCORD research project is now live. COordiNated Care Of Rare Diseases…
Bio Behçet’s Trial
The Bio Behçet’s trial The Bio Behçet’s trial aims to understand more about the different ways of treating Behçet’s. It…
Help create a national register for people with rare rheumatic diseases
Please see this ‘Patient and Public Involvement’ poster. PPI is now mandated for all medical research that affects patients. If…
Dragonfly TV: Casting call for patients
A medical science series is being made for the BBC. In this programme, they want to showcase the best, latest…
EURORDIS Black Pearl Awards 2019
Congratulations to our vice-chair! Many congratulations to our vice-chair Richard West who will be receiving an award from EURORDIS at…
It’s all in the name – Behçet’s UK
On 19th October 2018 the board of trustees formally voted in favour of renaming Behçet’s Syndrome Society to Behçet’s UK.…