UPDATE 15/05/20 This survey has now closed but you can still contact RAIRDA to share your experiences. The Rare Autoimmune…
Author: Deborah Cardinal
Ideas for fundraising whilst at home
As a small charity with no government funding we rely on donations to allow us to continue our work in…
Tips for Behçet’s patients to manage anxiety whilst at home during the Coronavirus outbreak
We understand that many of you will be struggling at the moment so we’ve compiled a list of just a…
Rare Disease Day
Today, February 29th, is Rare Disease Day. Rare diseases and conditions affect 300 million people worldwide. Behçet’s (also known as…
Countdown to Rare Disease Day 2020
Behçet’s UK are proud to support this year’s Rare Disease Day on 29th February 2020. Head to the Rare Disease…
Northern Ireland Rare Disease Partnership Events
The Northern Ireland Rare Disease Partnership has a couple of upcoming events which may be of interest to those of…
CONCORD Focus Group
COordiNated Care Of Rare Diseases (CONCORD) The CONCORD research team would like to find a few more people to take…
CONCORD Research Project – Survey Responses Needed!
Genetic Alliance UK are delighted to announce that their CONCORD research project is now live. COordiNated Care Of Rare Diseases…
Bio Behçet’s Trial
The Bio Behçet’s trial The Bio Behçet’s trial aims to understand more about the different ways of treating Behçet’s. It…
Help create a national register for people with rare rheumatic diseases
Please see this ‘Patient and Public Involvement’ poster. PPI is now mandated for all medical research that affects patients. If…