It’s not that long to go until this year’s International Behçet’s Awareness Day on Saturday 20 May 2023. If you…
Author: Deborah Cardinal
Do you use online ‘spoonie’ support communities? Participants wanted for research project
Participants are wanted for an MSc Health Psychology research project investigating middle aged and older female adults with invisible chronic…
Does pain affect your life? Participants wanted for research study
This research study into fibromyalgia in those with rheumatological diseases like Behçet’s is being coordinated by Dr Katy Plant, a…
#CareForRare on this year’s Rare Disease Day
3.5 million in the UK are affected by a rare condition – that’s 1 in 17 people. This year’s Rare…
Amazon Smile Closure
Many of you may already know that it has been announced that Amazon Smile, the scheme in which customers can…
Prescription Charges Survey – Share your thoughts
If you pay for your prescriptions please share your experience of the charges, by completing this survey. It would be…
Order merchandise and Christmas cards in time for Christmas 🎄
If you’d like to order any of our new merchandise and/or Christmas cards to be delivered in time for Christmas,…
Donate for FREE as you shop online for Black Friday deals
Love it or loathe it, Black Friday week is back for another year, bringing with it thousands of offers and…
How to manage Behçet’s at school and college: A guide for teachers, staff, parents and carers
Our new booklet is now available! Click here to download and find out more.
Welsh Annual Rare Disease Patient Network Meeting
It is the Welsh Annual Rare Disease Patient Network Meeting this Thursday 10 November 2022 at 10:30am – 2:30pm. Our…