Your Behçet’s Stories

We would like to hear your personal experiences if you are living with Behçet’s or if you are a carer and/or family member of someone who has Behçet’s.

We hope that you enjoy these interviews, and if you’d like to take part in the series yourself, all the details can be found at the bottom of the page.

New interviews will be publicised on our social media. Find us on Facebook and Instagram

Photo of Lauren, who has Behçet's — Lauren

Photo of Hayley, who has Behçet's — Hayley

Photo of Becca, who has Behçet's — Becca

Photo of Tasha, who has Behçet's, with her therapy dog - a black labrador called Luna Rose — Tasha

Photo of Bethany, who has Behçet's — Bethany

Photo of Jessica, who has Behçet's — Jessica

Photo of Cat, who has Behçet's, with her therapy dog - a labrador called Milo — Cat

Photo of Vicki, who has Behçet's — Vicki

Photo of Mubashar, who has Behçet's — Mubashar

Photo of Michael, who has Behçet's — Michael

Photo of Clare, who has Behçet's — Clare

Photo of Jordan, who has Behçet's — Jordan

Photo of Jenny, who has Behçet's — Jenny

Photo of Rachael, who has Behçet's, and is also a Behçet's UK trustee — Rachael

Could your story help others?

We would like to share your personal experiences of diagnosis and living with Behçet’s, and we’d like to hear from a wide variety of people, of all ages and backgrounds. We’d also like to hear from carers and/or family members of those affected by the condition.

You might have some great tips for managing your condition day-to-day that you would like to share to help others, or you might like to share how you manage your Behçet’s alongside your job or family commitments, or you might simply like to tell us about your journey to diagnosis.

If you’re a carer or family member of someone affected by Behçet’s, you might wish to share your personal experiences of caring for someone with a rare condition.

You can share as much or as little as you want with us.

If you are interested in taking part and would like to know more please email Deborah at info@behcetsuk.org

We look forward to hearing from you!