Working together
The rare disease patient is the orphan of health systems, often experiencing a lengthy journey to diagnosis, contradictory experiences, and varying levels of treatment and indeed understanding about their symptoms.
A rare disease is defined as affecting less than 1 in 2,000 people. Behçet’s UK, therefore, works with others so that its ‘collective voice’ can be heard – strength in numbers.
Behçet’s UK is a member of
We are also members of