Children & Young People 2025 – Living with Behçet’s
We would like children and young people with Behçet’s to join us at two workshops to create resources to share with other children, young people and their families to help them understand more about living with Behçet’s. You can help decide what to include in these resources and how we present them – this could be videos, animations, or anything else you can think of – we need your help to design them.
Behçet’s UK are working with Dr Clare Pain, Consultant Paediatric Rheumatologist at Alder Hey Children’s Hospital and the University of Liverpool to hold two relaxed, friendly and creative workshops, run by a team with experience working with children and young people with lifelong medical conditions.
If you are aged 7 – 21 years living in the UK with a confirmed Behçet’s diagnosis, please register your interest by 6 January 2025. All children and young people will receive an Amazon voucher for taking part.
Workshop 1
WHERE: Online
WHEN: Tuesday 21 January 2025
AT: 5 – 6pm (12 and under) or 6 – 7pm (13 and over)
Workshop 2
WHERE: Liverpool City Centre
WHEN: Saturday 1 March 2025
AT: 11am – 3pm for all ages plus a parent or guardian for those under 16
Registration closes on Monday 6 January 2025
Frequently asked questions
We have answered a few questions you may have about the project and workshops but if you have any other questions please don’t hesitate to contact us via email at info@behcetsuk.org or by calling us on 0345 130 7328.
What is the purpose of the project?
To create resources to support children, young people, and their families and to understand what we can be do to help children and young people with Behçet’s.
Who is running the project?
The project is led by Behçet’s UK Trustee Rachael Humphreys and Dr Clare Pain, Paediatric Rheumatologist at Alder Hey Children’s Hospital.
Who is funding the project?
The project is funded by Behçet’s UK and the British Association of Dermatologists. Synergy Medical will also be providing their expertise on a pro-bono basis to create materials such as animation and wellbeing booklets.
Who can take part?
Any child or young person aged 7 – 21 years old living in the UK with a confirmed Behçet’s diagnosis. If under 16 the parent or guardian must also give consent to take part.
When will I know if I am (or my child is) taking part?
We will confirm your place and send invitations out by 15 January 2025.
I can only attend one workshop can I still register?
We would love everyone to attend both workshops but understand this may not be possible. Please let us know on the registration form which workshop you can attend.
I am a parent/guardian. Can I attend the workshops?
For the online workshop this is entirely up to you and your child. You are welcome to attend if this makes you and your child feel more comfortable. We do suggest staying nearby, especially for children aged 12 and under.
For the face-to-face workshop anyone under the age of 16 must be accompanied by one parent or guardian who is over the age of 18.
Do I need my camera and microphone on for the online workshop?
We would like you to keep your camera and microphone on so you can join the discussion. If this is a problem please let us know on the registration form so that we can help you
Where will the face-to-face workshop be?
The workshop will be in Liverpool City Centre, just a short walk from Liverpool Lime Street and Central stations, bus stops and car parks.
Face-to-face workshop expenses
We might be able to help with travel expenses if you need this. Please contact us via email at info@behcetsuk.org or call us on 0345 130 7328.
All refreshments on the day of the workshop are provided.