Children & Young People 2025 – Living with Behçet’s
POSTPONED
Saturday 1 March 2025 11am – 3pm | Liverpool City Centre
Our workshop on Saturday 1 March 2025 has been postponed but will be rescheduled.
We would like children and young people with Behçet’s to join us at a face-to-face workshop to create resources to share with other children, young people and their families to help them understand more about living with Behçet’s. You can help decide what to include in these resources and how we present them – this could be videos, animations, or anything else you can think of – we need your help to design them.
Behçet’s UK are working with Dr Clare Pain, Consultant Paediatric Rheumatologist at Alder Hey Children’s Hospital and the University of Liverpool to hold a relaxed, friendly and creative workshop, run by a team with experience working with children and young people with lifelong medical conditions.
If you are aged 7 – 21 years living in the UK with a confirmed Behçet’s diagnosis, please register your interest by 23 February 2025.
All children and young people will receive an Amazon voucher for taking part.
Lunch and refreshments will be provided and we may be able to help with travel expenses.
WHERE: Liverpool City Centre
WHEN: Saturday 1 March 2025
AT: 11am – 3pm
WHO: Children and young people aged 7 – 21 years with a confirmed Behçet’s plus their parent or guardian
Registration closes on Sunday 23 February 2025
Frequently asked questions
We have answered a few questions you may have about the project and workshops but if you have any other questions please don’t hesitate to contact us via email at info@behcetsuk.org or by calling us on 0345 130 7328.
What is the purpose of the project?
To create resources to support children, young people, and their families, and to understand what we can do to help children and young people with Behçet’s.
Who is running the project?
The project is led by Behçet’s UK Trustee Rachael Humphreys and Dr Clare Pain, Paediatric Rheumatologist at Alder Hey Children’s Hospital.
Who is funding the project?
The project is funded by Behçet’s UK and the British Association of Dermatologists. Synergy Medical will also be providing their expertise on a pro-bono basis to create materials such as animation and wellbeing booklets.
Who can take part?
Any child or young person aged 7 – 21 years old living in the UK with a confirmed Behçet’s diagnosis. If under 16 the parent or guardian must give consent to take part.
When will I know if I am (or my child is) taking part?
We will be in touch via email within 5 working days of registering and we hope to be able to accommodate everyone interested in taking part who meets the criteria. Please check your spam folder.
I am a parent/guardian. Can I attend the workshops?
Parents and guardians can only attend if accompanying a child or young person taking part in the workshop.
Anyone under the age of 16 must be accompanied by one parent or guardian who is over the age of 18.
Young people aged 16 and over are welcome to bring a parent or guardian to the workshop.
Where will the face-to-face workshop be?
The workshop will be in Liverpool City Centre, just a short walk from Liverpool Lime Street and Central stations, bus stops and car parks.
Expenses
We may be able to help with travel expenses. If you need this please get in touch with us via email at info@behcetsuk.org or call us on 0345 130 7328.
All refreshments on the day of the workshop are provided.