2025 Behçet’s Quality of Life Survey

2025 Behçet’s Quality of Life Survey

Working in association, the Behçet’s Patients Centres and Behçet’s UK are launching the 2025 Quality of Life Survey for patients and members diagnosed with Behçet’s. This will be familiar to the longer-term Behçet’s UK members and patients of the Behçet’s Centres of Excellence, as it is very similar to the questionnaire from 2020.

The 2025 Behçet’s Quality of Life Survey is an online survey; not only will that keep costs of producing the survey to a minimum, it will also allow for the results to be analysed and made available much quicker.

To access the survey, please click on the button. Survey closes Thursday 20 November 2025.

We hope you will complete the survey as it will help us understand:

1. How Behçet’s presents itself across patients diagnosed with Behçet’s.

2. How diet affects the symptoms of Behçet’s.

3. Whether the Behçet’s Centres of Excellence, run by the NHS, are meeting the medical needs of Behçet’s patients.

4. Whether the support provided by the Support Coordinators, employed by Behçet’s Patients Centres, is meeting the non-medical needs of patients attending a Centre.

5. Whether Behçet’s UK is meeting the needs of Behçet’s patients.

6. How Behçet’s compares to other illnesses using a similar questionnaire.

The survey will only take between 15-20 minutes to complete. If you’re unable to complete it yourself, please ask a friend or carer to help as we’d like as many responses as possible.

When completing the survey follow the instructions included with each question and either tick boxes, rank symptoms or write in the details as instructed. Please be honest with your answers to ensure the validity of the survey.

All answers are voluntary, but we ask that you fill in as much detail as you are happy to share. That way we get the most data as possible.

We’d really appreciate you taking the time to complete this survey as the more responses we receive, the more we can do with the results.

We want to use this data to help improve the services you receive from both the Behçet’s Patients Centres, Behçet’s UK and the NHS.

If you have any questions about the research study, please contact Denise Lavers, Operational Lead, Behçet’s Patients Centres via email Denise@behcetspatients.org.uk

Many thanks for your continued support.