2020 Quality of Life Survey

The survey has now closed.
Thank you to everyone who took the time to complete the survey, we appreciate your continued support. The data is currently being analysed and we look forward to sharing the results with you in due course.

The 2020 Quality of Life Survey was jointly launched by Behçet’s UK and the Behçet’s Patients Centres in March 2020 and closed at the end of July 2020.

We asked for patients and members diagnosed with Behçet’s to complete the survey and hope the results will help us to understand:

1. How Behçet’s presents itself across patients diagnosed with the condition.

2. How diet affects the symptoms of Behçet’s.

3. Whether the Behçet’s Centres of Excellence, run by the NHS, are meeting the medical needs of Behçet’s patients.

4. Whether the support provided by the Support Coordinators, employed by Behçet’s Patients Centres, is meeting the non-medical needs of patients attending a Centre.

5. Whether Behçet’s UK is meeting the needs of Behçet’s patients.

6. How Behçet’s compares with other illnesses using a similar questionnaire.

If you have any questions about the research study, please contact John Mather, Operations Manager, Behçet’s Patients Centres, via email at john@behcetspatients.org.uk.