Parents and Guardians Online Support Group Meeting

Behçet’s UK Trustee, Amanda Moseley, is hosting a Parents and Guardians Online Support Group Zoom on Sunday, 16 November 2025, 14:00 – 15:30.

Parents and guardians of children and young people with Behçet’s face challenges—medical, emotional, and practical—that can sometimes feel overwhelming and isolating.

This support group offers a safe and welcoming space where you can connect with others who understand your journey. Share experiences and ask questions on everything from managing symptoms and treatments to navigating school and daily life.

The group is open to parents and guardians aged 18 or over living in the UK who have a child diagnosed with, or seeking a diagnosis of, Behçet’s.

Meeting topic: General meeting

This session will be a general support group meeting, where everyone can chat and ask questions. Amanda will guide the discussion based on your input.

How to join

If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:30 a.m. on Friday, 14 November 2025.

If you are unable to attend this meeting but would like to receive invitations to future meetings, please complete the online registration form at any time.

Frequently Asked Questions

If you’d like to learn more about our support groups, please view our Frequently Asked Questions.  If you have any other questions, please feel free to email us at info@behcetsuk.org

Remember

Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.

Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.