Wales Online Support Group Meeting - Christmas catch-up
2024-12-14 10:00 - 11:00 (Europe/London)
Trustee Rachael Humphreys is hosting a Zoom support group Christmas catch-up meeting for those affected by Behçet’s in Wales on Saturday 14 December 2024 from 10am-11am. Wear your Christmas jumper and bring a mince pie!
If you’d like to join the meeting, please email Rachael via info@behcetsuk.org by 12pm midday on Friday 13 December.
Read Rachael’s Behçet’s story in the ‘Your Behçet’s Stories’ series here.

Behçet's Scotland Support Group Zoom
2025-01-22 19:30 - 21:00
Vice-chair Catherine O’Hara is hosting an online support group meeting Zoom on Wednesday 22 January 2025 at 7.30 pm. Anyone affected by Behçet’s who lives in Scotland is invited to join this friendly group.
Behçet’s UK Chair, Tony Thornburn, will also join Catherine as they are keen to share and discuss an upcoming webinar we are running in conjunction with the Office for Rare Condition Glasgow focusing on the management of Behçet’s in Scotland.
If you would like to join the meeting or would like to know more, please contact Catherine by email via info@behcetsuk.org

Wales Online Support Group Meeting
2025-02-22 10:00 - 12:00
Trustee Rachael Humphreys is hosting another Zoom support group meeting for those affected by Behçet’s in Wales on Saturday 22 February 2025 from 10am-12pm.
If you’d like to join the meeting, please email Rachael via info@behcetsuk.org by 12pm midday on Friday 21 February.
Read Rachael’s Behçet’s story in the ‘Your Behçet’s Stories’ series here.

Northern Ireland Online Support Group Meeting
2025-02-25 19:00
Trustee Fionnuala Mc Kinley is hosting another online support group meeting on Tuesday 25 February 2025 from 7pm am via Zoom. Anyone affected by Behçet’s in Northern Ireland is welcome to join the meeting.
If you would like to join the meeting or have any queries, please contact Fionnuala at fionnuala.mckinley@behcetsuk.org

WEBINAR: Management of Behçet's in Scotland
2025-03-07 12:30 - 14:00
Are you affected by Behçet’s and live in Scotland?

Join the Management of Behçet’s webinar on Friday 7 March 2025 from 12:30pm – 2pm. This is a collaborative event run by Behçet’s UK and the Office for Rare Conditions Glasgow in conjunction with the University of Glasgow, Glasgow Children’s Hospital Charity and NHS Greater Glasgow and Clyde.

The webinar is open to medical professionals as well as anyone affected by Behçet’s (including patients and parents/carers) living in Scotland.

Please note registration will close on Thursday 6 March 2025.

See the flyer for the full schedule.

To register go to https://link.webropol.com/ep/BEHCETS

England Online Support Group Meeting
2025-03-18 19:30 - 21:00
Volunteer Sarah McAllister is hosting an online support group on Zoom on Tuesday 18 March 2025 from 7.30pm-9:00pm for anyone affected by Behçet’s patients and living in England.
If you are interested in joining or wish to know more, please get in touch with Sarah via info@behcetsuk.org

Wales Online Support Group Meeting
2025-03-29 10:00 - 12:00
Trustee Rachael Humphreys is hosting another Zoom support group meeting for those affected by Behçet’s in Wales on Saturday 29 March 2025 from 10am-12pm.
If you’d like to join the meeting, please email Rachael via info@behcetsuk.org by 12pm midday on Friday 28 March.
Read Rachael’s Behçet’s story in the ‘Your Behçet’s Stories’ series here.

Wales Online Support Group Meeting
2025-04-12 10:00 - 12:00
Trustee Rachael Humphreys is hosting another Zoom support group meeting for those affected by Behçet’s in Wales on Saturday 12 April 2025 from 10am-12pm.
(Please note this meeting has been rescheduled from the original date of the 26 April 2025).
If you’d like to join the meeting, please email Rachael via info@behcetsuk.org by 12pm midday on Friday 11 April.
Read Rachael’s Behçet’s story in the ‘Your Behçet’s Stories’ series here.

England Online Support Group Meeting
2025-04-29 19:30 - 21:00
Volunteer Sarah McAllister is hosting an online support group on Zoom on Tuesday 29 April 2025 from 7.30pm-9:00pm for anyone affected by Behçet’s and living in England.
If you are interested in joining or wish to know more, please get in touch with Sarah via info@behcetsuk.org

Wales Online Support Group Meeting
2025-05-24 10:00 - 12:00
Trustee Rachael Humphreys is hosting another Zoom support group meeting for those affected by Behçet’s in Wales on Saturday 24 May 2025 from 10am-12pm.
If you’d like to join the meeting, please email Rachael via info@behcetsuk.org by 12pm midday on Friday 23 May.
Read Rachael’s Behçet’s story in the ‘Your Behçet’s Stories’ series here.

Northern Ireland Support Group Lunch
2025-05-24 13:00
Trustee Fionnuala McKinley is hosting a support group lunch meeting on Saturday 24 May 2025 at 1pm at the Armagh City Hotel in Armagh, for those affected by Behçet’s in Northern Ireland.
It is free to attend however you will need to buy your own food and drinks.
If you’d like to attend, please email Fionnuala via info@behcetsuk.org by Wednesday 14 May 2025, and please include your mobile number in case we need to get in touch with you on the day.

England Online Support Group Meeting
2025-06-03 19:30 - 21:00
Volunteer Sarah McAllister is hosting an online support group on Zoom on Tuesday 3 June 2025 from 7.30pm-9:00pm for anyone affected by Behçet’s and living in England.

If you are interested in joining or wish to know more, please get in touch with Sarah via info@behcetsuk.org

Behçet's UK Friends and Family Day 2025
2025-06-21 09:30 - 17:00 | Grafham Water Centre, Perry, Huntingdon, Cambridgeshire, PE28 0GW
Click here to find out all the details and reserve your place(s).

Children & Young People Living with Behçet's
2025-07-05 10:00 - 14:00
Children & Young People 2025

England Online Support Group Meeting
2025-07-10 19:30 - 21:00
Volunteer Sarah McAllister is hosting an online support group on Zoom on Thursday, 10 July 2025, from 7.30 pm – 9.00 pm for anyone affected by Behçet’s and living in England.
Meeting topic: Behçet’s & intestines
Overview and discussion about how Behçet’s affects the intestines: complications that may arise, and what treatments are available.
If you are interested in joining or wish to know more, please get in touch with Sarah via info@behcetsuk.org
Note: We do not offer medical advice – this topic is to signpost you to information available online and discuss what works for others to encourage conversations with your own medical team about symptoms and treatment. Any discussions are anecdotal and must be treated as such.

Wales Support Group Brunch
2025-07-19 11:00 - 13:00 | Waterloo Tea Gardens, Wyndham Arcade, The Hayes, Cardiff, CF10 1FH, United Kingdom
Trustee Rachael Humphreys is hosting a support group brunch on Saturday 19 July 2025 at 11am – 1pm at Waterloo Tea Gardens, in Wyndham Arcade in Cardiff, for those affected by Behçet’s in Wales.
It is free to attend however you will need to buy your own food and drinks.
If you’d like to attend, please email Rachael via info@behcetsuk.org, and please include your mobile number in case we need to get in touch with you on the day.

Wales Online Support Group Meeting
2025-09-27 10:00 - 12:00 | Online
Trustee Rachael Humphreys is hosting another Zoom support group meeting for those affected by Behçet’s in Wales on Saturday 27 September 2025 from 10am-12pm.
If you’d like to join the meeting, please email Rachael via info@behcetsuk.org by 12pm midday on Friday 26 September.
Read Rachael’s Behçet’s story in the ‘Your Behçet’s Stories’ series here.

Northern Ireland Support Group Laughter Yoga Meetup
2025-09-27 11:00 - 13:00 | Canal Court Hotel, 29-32 Merchants Quay, Newry, BT35 8HF, United Kingdom
Fionnuala Mc Kinley and the Northern Ireland Support Group are meeting for laughter yoga later this month and invite anyone affected by Behçet’s and living in Northern Ireland to join them.
What
Laughter Yoga followed by tea/coffee, and a sandwich lunch
When
Saturday 27 September 2025 11:00 am – 1:00 pm
Where
Canal Court Hotel, Newry
Cost
£5 to attend, which will cover the cost of the room hire. Behçet’s UK will cover the cost of lunch
How to book
Unfortunately, booking has now closed.
What is Laughter Yoga?
Laughter yoga (Hasya yoga) is a laughter exercise program that emphasizes three elements: laughter & playfulness, yogic breathing exercises, and mindfulness meditation.
At the core of Laughter Yoga is the premise that everyone can and knows how to laugh, regardless of what their mind may say. Participants do not need to have a finely tuned sense of humour, know jokes, or even be happy – laughter yoga invites you to ‘laugh for no reason’, faking it until laughter becomes real, unforced and flowing.
Laughter yoga is an easy way to strengthen all immune functions, bring more oxygen to the body and brain, foster positive feelings, and improve interpersonal skills.

England Online Support Group Meeting
2025-09-30 19:30 - 21:00
Volunteer Sarah McAllister is hosting an online support group on Zoom on Tuesday 30 September 2025, from 7.30 pm – 9.00 pm for anyone affected by Behçet’s and living in England.

Meeting topic: General Support Meeting
Please note a change to the original schedule: this session will now be a general support group meeting, where everyone can chat and ask questions. Sarah will guide the discussion based on your input.
Next meeting: The original topic of genital ulcers will now be covered at the next session. We will send out the invite soon. Sarah would like to hear from anyone who wishes to share their experiences, particularly from male patients. Please contact Sarah via info@behcetsuk.org, and we will pass on your details. Experiences can be shared anonymously if preferred.

If you are interested in joining or wish to know more, please get in touch with Sarah via info@behcetsuk.org

Note: We do not offer medical advice – these meetings are to signpost you to information available online and discuss what works for others to encourage conversations with your own medical team about symptoms and treatment. Any discussions are anecdotal and must be treated as such.

Behçet's UK 2025 Conference & AGM
2025-10-18 09:30 - 16:30 | Penta Hotel, Reading
Click here to find out more and register

England Online Support Group Meeting (Lunchtime)
2025-10-22 12:00 - 13:30
In response to feedback that evening support group meetings don’t work for everyone, our volunteer group leader, Sarah, has scheduled the first England Behçet’s Lunchtime Support Group Zoom on Wednesday, 22 October 2025, 12:00 – 13:30.

We hope this time works for many group members and may also allow some who work during the day to join part of the session during their lunch break.

Evening support group Zoom meetings will continue for those who prefer them. The next evening session will be Monday 10 November 2025, 19:30 – 21:00. More details to follow soon.
Meeting topic: General Support
This session will be a general support group meeting, where everyone can chat and ask questions. Sarah will guide the discussion based on your input.
Note: We do not offer medical advice. This meeting is to signpost you to information available online and discuss what works for others to encourage conversations with your own medical team about symptoms and treatment. Any discussions are anecdotal and must be treated as such.

If you are interested in joining or wish to know more, please get in touch with Sarah via info@behcetsuk.org

Wales Online Support Group Meeting
2025-11-02 10:30 - 12:30
Trustee Rachael Humphreys is hosting another Zoom support group meeting for those affected by Behçet’s in Wales on Sunday 2 November 2025 from 10:30am-12:30pm. Please note that this meeting has been rescheduled from its original date of the 26 October.
If you’d like to join the meeting, please email Rachael via info@behcetsuk.org by 12pm midday on Friday 31 October.
Read Rachael’s Behçet’s story in the ‘Your Behçet’s Stories’ series here.

England Online Behçet's Support Group Meeting
2025-11-10 19:30 - 21:00
Volunteer Sarah McAllister is hosting an online support group on Zoom on Monday 10 November 2025, from 7.30 pm – 9.00 pm for anyone aged 18 or over living in England who is affected by Behçet’s.

Meeting topic: Genital Ulcers
Like Sarah’s previous group meeting on mouth ulcers, genital ulcers are also among the most common symptoms experienced by patients with Behçet’s. Therefore, Sarah thought this would be an ideal topic to focus on at the support group meeting.
How to join

If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:30 am on Monday 10 November 2025.
If you are unable to attend this meeting but would like to receive invitations to future meetings, please complete the online registration form at anytime.
Frequently Asked Questions
If you’d like to learn more about our support groups, please view our Frequently Asked Questions. If you have any other questions, please feel free to email us at info@behcetsuk.org
Remember
Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.
Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.

Parents and Guardians Online Support Group Meeting
2025-11-16 14:00 - 15:30 | Online
Behçet’s UK Trustee, Amanda Moseley, is hosting a Parents and Guardians Online Support Group Zoom on Sunday, 16 November 2025, 14:00 – 15:30.
Parents and guardians of children and young people with Behçet’s face challenges – medical, emotional, and practical – that can sometimes feel overwhelming and isolating.
This support group offers a safe and welcoming space where you can connect with others who understand your journey. Share experiences and ask questions on everything from managing symptoms and treatments to navigating school and daily life.
The group is open to parents and guardians aged 18 or over living in the UK who have a child diagnosed with, or seeking a diagnosis of, Behçet’s.
Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Amanda will guide the discussion based on your input.
How to join
If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:30 a.m. on Friday, 14 November 2025.
If you are unable to attend this meeting but would like to receive invitations to future meetings, please complete the online registration form at any time.
Frequently Asked Questions
If you’d like to learn more about our support groups, please view our Frequently Asked Questions. If you have any other questions, please feel free to email us at info@behcetsuk.org
Remember
Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.
Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.

Men's Online Behçet's Support Group Meeting
2025-11-18 19:30 - 21:00
Behçet’s UK Chair, Tony Thornburn, is hosting the first Men’s Behçet’s Support Group Zoom on Tuesday, 18 November 2025, 19:30 – 21:00.
This group provides a space for men living with Behçet’s to connect, share experiences, and discuss the challenges they face in daily life. Whether it’s managing symptoms, treatment routines, work, or personal goals, group members can exchange practical advice and strategies in a supportive, respectful environment.
The group is open to men aged 18 or over living in the UK who are diagnosed with (or seeking a diagnosis of) Behçet’s.
Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Tony will guide the discussion based on your input.
How to join
If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:30 a.m. on Tuesday, 18 November 2025.
If you are unable to attend this meeting but would like to receive invitations to future meetings, please complete the online registration form at any time.
Frequently Asked Questions
If you’d like to learn more about our support groups, please view our Frequently Asked Questions. If you have any other questions, please feel free to email us at info@behcetsuk.org
Remember
Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.
Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.

Spouse and Partner Online Support Group Meeting
2025-12-01 19:00 - 20:30 | Online
Behçet’s UK Trustee Fionnuala Mc Kinley, is hosting the first online support group for spouses and partners of people living with Behçet’s on Monday 1 December 2025, 19:00 – 20:30.
“When a partner develops a long-term chronic illness like Behçet’s, it affects more than just the person living with the condition. Family, friends, and co-workers may feel the impact, but often the greatest effect is on their spouse or partner.”
Fionnuala McKinley, Behçet’s UK Trustee
This group provides a safe and supportive space for anyone living in the UK whose spouse or partner has Behçet’s to share their thoughts and connect with others in similar situations who understand what they’re going through.
The group is open to people living in the UK (18+) whose spouse or partner has been diagnosed with, or is seeking a diagnosis of, Behçet’s.
Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Fionnuala will guide the discussion based on your input.
How to join
If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:30 a.m. on Monday, 1 December 2025.
If you are unable to attend this meeting but would like to receive invitations to future meetings, please complete the online registration form at any time.
Frequently Asked Questions
If you’d like to learn more about our support groups, please view our Frequently Asked Questions. If you have any other questions, please feel free to email us at info@behcetsuk.org
Remember
Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.
Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.

POSTPONED: Northern Ireland Support Group Christmas Lunch
2025-12-06 12:15 | The Halfway House, 80 Halfway Rd, Banbridge, BT32 4HB
Unfortunately, due to a combination of ill health and busy schedules among the Northern Ireland support group members, Fionnuala has had to reschedule the pre-Christmas meetup, originally scheduled for Saturday 6 December. It will now take place in the New Year.

Save the date of Saturday 24 January 2026 as it will take place then, same time and place. More details to follow in the new year.

Frequently Asked Questions
If you’d like to learn more about our support groups, please view our Frequently Asked Questions. If you have any other questions, please feel free to email us at info@behcetsuk.org
Remember
Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.
Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.

Scotland Online Support Group Meeting
2025-12-09 19:00 - 20:30
Vice-chair Catherine O’Hara is hosting a support group meeting via Zoom on Tuesday 9 December 2025 at 7pm – 8:30pm for any adults affected by Behçet’s and living in Scotland.
Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Catherine will guide the discussion based on your input.
How to join
If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:30 a.m. on Tuesday 9 December 2025.
If you are unable to attend this meeting but would like to receive invitations to future meetings, please complete the online registration form at any time.
Frequently Asked Questions
If you’d like to learn more about our support groups, please view our Frequently Asked Questions. If you have any other questions, please feel free to email us at info@behcetsuk.org
Remember
Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.
Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.

Wales Support Group Christmas Brunch
2025-12-13 11:00 | Bill’s Cardiff Central Restaurant, 27-39 Wyndham Arcade, Cardiff, CF10 1FH
Rachael Humphreys would like to invite you to join her and the Behçet’s Wales Support Group for a pre-Christmas brunch. It’s a wonderful chance to meet up and catch up with everyone over a relaxing brunch. All the details are below.
Date and Time: Saturday, 13 December 2025, 11:00 am
Where: Bill’s Cardiff Central Restaurant, 27-39 Wyndham Arcade, Mill Lane, Cardiff, CF10 1FH
Cost : Free to attend; however, you will need to purchase your own meal and drinks on the day.
RSVP: Please let us know if you can attend by clicking here and completing the online form to reserve your seat by 12:00 pm (midday) on Friday, 5 December 2025.

Frequently Asked Questions
If you’d like to learn more about our support groups, please view our Frequently Asked Questions. If you have any other questions, please feel free to email us at info@behcetsuk.org
Remember
Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.
Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.

England Online Support Group Meeting (Lunchtime)
2025-12-18 12:00 - 13:30 | Online
Volunteer Sarah McAllister is hosting another online LUNCHTIME support group on Zoom on Thursday 18 December 2025, from 12.00 pm (midday) – 1.30pm pm for anyone aged 18 or over living in England who is affected by Behçet’s.

Meeting topic: General Support
This session will be a general support group meeting, where everyone can chat and ask questions. Sarah will guide the discussion based on your input.
How to join

If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:00 am on Thursday 18 December 2025.
If you are unable to attend this meeting but would like to receive invitations to future meetings, please complete the online registration form at any time.
Frequently Asked Questions
If you’d like to learn more about our support groups, please view our Frequently Asked Questions. If you have any other questions, please feel free to email us at info@behcetsuk.org
Remember
Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.
Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.
