Behçet's UK

Behçet's UK 2021 Conference & AGM
2021-10-16 11:00 - 15:00 (Europe/London) | Online
Find out more and how to register here: Behçet’s UK 2021 Conference & AGM

Northern Ireland Support Group Meeting
2021-09-22 19:00
Trustee Fionnuala McKinley is hosting another support group meeting on Wednesday 22 September 2021 at 7pm via Zoom. Anyone affected by Behçet’s in Northern Ireland is welcome to join the meeting.
If you would like to join the meeting, or have any queries, please contact Fionnuala at fionnuala.mckinley@behcetsuk.org

Thames Valley Support Group Meeting
2021-09-07 19:30 - 21:00
Volunteer Clare Gibson is holding the first Thames Valley Support Group Meeting for those affected by Behçet’s this September via Zoom.

Anyone affected by Behçet’s, including those who live outside the Thames Valley area, are welcome to join the Zoom. However please be aware that this is a regional support group and there will be face-to-face meetings in future, which will be in the Thames Valley area as shown on the above map.
If you’d like to join the Zoom, please email info@behcetsuk.org so we can send you the meeting details.
If you’d like to know more about Clare who will be kindly running the new group, we interviewed her for our ‘Your Behçet’s Stories’ series and you can read her story here.

Northern Ireland Support Group Meeting
2021-08-18 19:00
August 18 @ 7:00 pm

Free

Fionnuala McKinley is hosting another online Zoom support group meeting on Wednesday 18 August 2021 at 19:00.
Anyone affected by Behçet’s who lives in Northern Ireland is invited to attend the Zoom.
If you would like to join the meeting or would like to know more about the group please contact Fionnuala by email at fionnuala.mckinley@behcetsuk.org or contact the admin team at info@behcetsuk.org or by calling 0345 130 7328.

Northern Ireland online support group meeting
2021-06-02 19:00 - 20:30 | Online
Fionnuala McKinley is hosting another online Zoom support group meeting on Wednesday 02 June 2021 at 19:00.
Anyone affected by Behçet’s who lives in Northern Ireland is invited to attend the Zoom.
If you would like to join the meeting or would like to know more about the group please contact Fionnuala by email at fionnuala.mckinley@behcetsuk.org

FREE ONLINE WEBINAR - RCPCH-BPSU: Behçet's in children and young people
2021-05-10 13:00 - 14:00 | Online
The RCPCH and BPSU will be presenting the findings from their 2017 study, funded by Behçet’s UK (then Behçet’s Syndrome Society) and Alder Hey Children’s Charity, into Behçet’s in children and young people in May 2021.
Although the target audience is medical professionals we still recommend this webinar for any parents who have children with Behçet’s.
Register and find out more – RCPCH-BPSU series: Behcet’s Syndrome in children and young people
Information about the study can be found here: British Paediatric Surveillance Unit Study

Scotland Behçet's Support Group - online Zoom
2021-04-21 19:30 - 21:00 | Online
Catherine O’Hara is hosting another online Zoom support group meeting on 21 April 2021 at 19:30. Anyone affected by Behçet’s who lives in Scotland are invited to join this friendly group.
If you would like to join the meeting or would like to know more please contact Catherine by email at catherineohara@behcetsuk.org.

FREE ONLINE WEBINAR - Medicine and Me: Living with Behçet's
2021-04-20 18:00 - 20:00
Medicine and Me meetings aim to provide an outline of current best practice and future updates of important conditions and to give direct voice to patients and their carers and enable them to discuss their concerns and reflections on the impact of diagnosis, investigation, and management. Physicians, surgeons, and indeed all healthcare professionals, continue to learn from and be inspired to greater efforts to improve care by hearing directly from patients.
The theme will be fatigue/exhaustion in Behçet’s patients, and Behçet’s UK are hoping that this will be a precursor to specific research in this area, which most agree is an unmet need.
We encourage members to sign-up for this free online event.

Northern Ireland Behçet's Support Group - online Zoom
2021-04-17 14:00 - 15:30 | Online
Fionnuala McKinley is hosting another online Zoom support group meeting on 17 April 2021 at 14:00. Anyone affected by Behçet’s who lives in Northern Ireland are invited to attend the Zoom.
If you would like to join the meeting or would like to know more about the group please contact Fionnuala by email at fionnuala.mckinley@behcetsuk.org

Behçet's to the Beach
2021-03-01 - 2021-09-30
Take part in Behçet’s to the Beach, our challenge for 2021, where you can join in from the comfort of your own home or local neighbourhood!

Run, walk, push, row, cycle, swim, scoot, or skate a virtual route from Behçet’s UK to one, or all, of the best beaches in the UK. Pick your challenge and register anytime between 1 March 2021 and 15 August 2021, then complete your miles whenever and wherever you choose by 30 September 2021.
Find out more and register today!

Parents of Children with Behçet's - Support Group Meeting via Zoom
2021-02-28 15:00 - 16:30 | Online
Trustee, Amanda, will be running another online support group meeting for parents of children with Behçet’s after the success of the first group held at the end of January.
If you would like to join the relaxed friendly group for the next meeting in February please contact the admin team by email at info@behcetuk.org before 11am on Friday 26 February 2021

Scotland Support Group Meeting via Zoom
2021-02-27 11:00 - 12:30 | Online
After the success of last months meeting, Vice-Chair, Catherine O’Hara is hosting another online Zoom support group meeting. This is for anyone affected by Behcet’s who lives in Scotland.
If you would like to join please register your interest by emailing Catherine at catherineohara@behcetsuk.org

Northern Ireland Support Group Meeting via Zoom
2021-02-13 11:00 - 12:30 | Online
Trustee Fionnuala McKinley is hosting an online Zoom support group meeting.
If you would like to join please register your interest by emailing Fionnuala at fionnuala.mckinley@behcetsuk.org

Parents of children with Behçet's - Support Group Meeting via Zoom
2021-01-30 15:00 - 16:30 | Online
Trustee Amanda Moseley is hosting our first online Zoom support group meeting for parents of children with Behçet’s.
If you would like to join please register your interest by emailing us at info@behcetuk.org before 11am on 29 January 2021

Scotland Support Group Meeting via Zoom
2021-01-30 11:00 - 12:30 | Online
Vice Chair Catherine O’Hara is hosting an online Zoom support group meeting with Jodie Stuart for anyone affected by Behcet’s who lives in Scotland.
If you would like to join please register your interest by emailing Catherine at catherineohara@behcetsuk.org

Behçet's UK 2020 AGM & Conference
2020-10-17 11:00 - 15:00 | Online
Due to the current COVID-19 pandemic, we will be hosting our first online AGM & Conference via Zoom Webinar.
Find out more, including how to register here: https://behcetsuk.org/2020-agm-conf

Northern Ireland Support Group Meeting via Zoom
2020-10-10 11:00 - 13:00
This will be an online meeting via Zoom hosted by Fionnuala. There will also be a guest speaker from Disability Action to talk about PIP and the appeal process. To register your interest, please email info@behcetsuk.org
