Behçet's UK

England Online Support Group Meeting
2024-05-21 19:30 - 21:00 (Europe/London) | Online
Volunteer Clare Gibson is hosting another online support group on Zoom on Tuesday 21 May from 7.30pm-9:00pm for any Behçet’s patients (diagnosed or awaiting diagnosis) in England.
If you are interested in joining or wish to know more, please get in touch with Clare via info@behcetsuk.org
You can read about Clare and her Behçet’s story here.

Wales Online Support Group Meeting
2024-06-15 10:00 - 12:00
Trustee Rachael Humphreys is hosting another Zoom support group meeting for those affected by Behçet’s in Wales on Saturday 15 June 2024 from 10am-12pm.
If you’d like to join the meeting, please email Rachael via info@behcetsuk.org by 12pm midday on Friday 14 June.
Read Rachael’s Behçet’s story in our ‘Your Behçet’s Stories’ series here.

Behçet's UK Friends and Family Day 2024
2024-06-22 09:30 - 17:00 | Llandegfedd Lake, Coed y Paen, Pontypool, Monmouthshire, NP4 0SY
We’re heading to South Wales for 2024 – join us for our FREE day of fun this June!
This will be our seventh year hosting our Behçet’s Friends and Family Day and this year we will be heading to Llandegfedd Lake, near Pontypool on Saturday 22 June 2024. The centre is just 20 miles from Cardiff and less than 10 miles from Newport and if you are coming from South West England, Severn bridge crossings are now free in both directions.
Come along, take part or spectate – the choice is yours – but either way as we always say – it’s a wonderful chance for members of Behçet’s UK to get together for a FREE fun day out with their family and/or friends. It gives children and adults alike the chance to try some fun activities, make new friends and meet other families affected by Behçet’s
Find out more

Wales Online Support Group Meeting - POSTPONED
2024-07-20 10:00 - 12:00
Due to unforeseen circumstances the next support group meeting for those in Wales scheduled for Saturday 20 July 2024 has been postponed.
We apologise for any disappointment.
The next meeting will be arranged for September and the date will be confirmed at a later stage. If you’d like more information about future support groups, or to be notified of the next meeting date when it is announced please email Rachael via info@behcetsuk.org

Northern Ireland Support Group Meeting
2024-08-17 11:00 | Strandfield Cafe, Dundalk, County Louth, A91 X248, Ireland
The Northern Ireland Support Group are meeting at 11am on Saturday 17 August 2024 at Strandfield Cafe, Dundalk, County Louth, Ireland.
If arriving from Belfast, come off at junction 18, follow signs for Ballymascanlon Hotel. the Garden Centre is on the right coming off the second roundabout before the hotel.
If you are attending, or have any queries, please contact Fionnuala at fionnuala.mckinley@behcetsuk.org

Wales Online Support Group Meeting
2024-09-28 10:00 - 12:00
Trustee Rachael Humphreys is hosting another Zoom support group meeting for those affected by Behçet’s in Wales on Saturday 28 September 2024 from 10am-12pm.
If you’d like to join the meeting, please email Rachael via info@behcetsuk.org by 12pm midday on Friday 27 September.
Read Rachael’s Behçet’s story in our ‘Your Behçet’s Stories’ series here.

Behçet's UK Annual Conference & AGM 2024
2024-10-19 09:30 - 16:30 | Holiday Inn Liverpool City Centre, Lime St, Liverpool, L1 1NQ
We are pleased to confirm that the 2024 Conference and AGM will be held on Saturday 19 October 2024 and will be a hybrid conference. Attend in person at the Holiday Inn Liverpool City Centre or join us online by Zoom Webinar.
Click here to find out more and register today

Wales Online Support Group Meeting
2024-10-26 10:30 - 12:00
Trustee Rachael Humphreys is hosting another Zoom support group meeting for those affected by Behçet’s in Wales on Saturday 26 October 2024 from the slightly later than usual time of 10:30am-12pm.
If you’d like to join the meeting, please email Rachael via info@behcetsuk.org by 12pm midday on Friday 25 October.
Read Rachael’s Behçet’s story in our ‘Your Behçet’s Stories’ series here.

Wales Online Support Group Meeting
2024-11-23 10:00 - 12:00
Trustee Rachael Humphreys is hosting another Zoom support group meeting for those affected by Behçet’s in Wales on Saturday 23 November 2024 from 10am-12pm.
If you’d like to join the meeting, please email Rachael via info@behcetsuk.org by 12pm midday on Friday 22 November.
Read Rachael’s Behçet’s story in the ‘Your Behçet’s Stories’ series here.

Northern Ireland Support Group Christmas Lunch
2024-11-30 13:00 - 15:00 | The Halfway House, 80 Halfway Rd, Banbridge, BT32 4HB
The Northern Ireland Support Group are meeting for a Christmas lunch at 1pm on Saturday 30 November 2024 at The Halfway House, 80 Halfway Rd, Banbridge, BT32 4HB.
It’s free to attend but you will need to buy your own food and drinks.
If you would like to attend, please contact Fionnuala at fionnuala.mckinley@behcetsuk.org by 11:30am on Monday 25 November 2024.

Wales Online Support Group Meeting - Christmas catch-up
2024-12-14 10:00 - 11:00
Trustee Rachael Humphreys is hosting a Zoom support group Christmas catch-up meeting for those affected by Behçet’s in Wales on Saturday 14 December 2024 from 10am-11am. Wear your Christmas jumper and bring a mince pie!
If you’d like to join the meeting, please email Rachael via info@behcetsuk.org by 12pm midday on Friday 13 December.
Read Rachael’s Behçet’s story in the ‘Your Behçet’s Stories’ series here.

Behçet's Scotland Support Group Zoom
2025-01-22 19:30 - 21:00
Vice-chair Catherine O’Hara is hosting an online support group meeting Zoom on Wednesday 22 January 2025 at 7.30 pm. Anyone affected by Behçet’s who lives in Scotland is invited to join this friendly group.
Behçet’s UK Chair, Tony Thornburn, will also join Catherine as they are keen to share and discuss an upcoming webinar we are running in conjunction with the Office for Rare Condition Glasgow focusing on the management of Behçet’s in Scotland.
If you would like to join the meeting or would like to know more, please contact Catherine by email via info@behcetsuk.org

Wales Online Support Group Meeting
2025-02-22 10:00 - 12:00
Trustee Rachael Humphreys is hosting another Zoom support group meeting for those affected by Behçet’s in Wales on Saturday 22 February 2025 from 10am-12pm.
If you’d like to join the meeting, please email Rachael via info@behcetsuk.org by 12pm midday on Friday 21 February.
Read Rachael’s Behçet’s story in the ‘Your Behçet’s Stories’ series here.

Northern Ireland Online Support Group Meeting
2025-02-25 19:00
Trustee Fionnuala Mc Kinley is hosting another online support group meeting on Tuesday 25 February 2025 from 7pm am via Zoom. Anyone affected by Behçet’s in Northern Ireland is welcome to join the meeting.
If you would like to join the meeting or have any queries, please contact Fionnuala at fionnuala.mckinley@behcetsuk.org

WEBINAR: Management of Behçet's in Scotland
2025-03-07 12:30 - 14:00
Are you affected by Behçet’s and live in Scotland?

Join the Management of Behçet’s webinar on Friday 7 March 2025 from 12:30pm – 2pm. This is a collaborative event run by Behçet’s UK and the Office for Rare Conditions Glasgow in conjunction with the University of Glasgow, Glasgow Children’s Hospital Charity and NHS Greater Glasgow and Clyde.

The webinar is open to medical professionals as well as anyone affected by Behçet’s (including patients and parents/carers) living in Scotland.

Please note registration will close on Thursday 6 March 2025.

See the flyer for the full schedule.

To register go to https://link.webropol.com/ep/BEHCETS

England Online Support Group Meeting
2025-03-18 19:30 - 21:00
Volunteer Sarah McAllister is hosting an online support group on Zoom on Tuesday 18 March 2025 from 7.30pm-9:00pm for anyone affected by Behçet’s patients and living in England.
If you are interested in joining or wish to know more, please get in touch with Sarah via info@behcetsuk.org

Wales Online Support Group Meeting
2025-03-29 10:00 - 12:00
Trustee Rachael Humphreys is hosting another Zoom support group meeting for those affected by Behçet’s in Wales on Saturday 29 March 2025 from 10am-12pm.
If you’d like to join the meeting, please email Rachael via info@behcetsuk.org by 12pm midday on Friday 28 March.
Read Rachael’s Behçet’s story in the ‘Your Behçet’s Stories’ series here.

Wales Online Support Group Meeting
2025-04-12 10:00 - 12:00
Trustee Rachael Humphreys is hosting another Zoom support group meeting for those affected by Behçet’s in Wales on Saturday 12 April 2025 from 10am-12pm.
(Please note this meeting has been rescheduled from the original date of the 26 April 2025).
If you’d like to join the meeting, please email Rachael via info@behcetsuk.org by 12pm midday on Friday 11 April.
Read Rachael’s Behçet’s story in the ‘Your Behçet’s Stories’ series here.

England Online Support Group Meeting
2025-04-29 19:30 - 21:00
Volunteer Sarah McAllister is hosting an online support group on Zoom on Tuesday 29 April 2025 from 7.30pm-9:00pm for anyone affected by Behçet’s and living in England.
If you are interested in joining or wish to know more, please get in touch with Sarah via info@behcetsuk.org

Wales Online Support Group Meeting
2025-05-24 10:00 - 12:00
Trustee Rachael Humphreys is hosting another Zoom support group meeting for those affected by Behçet’s in Wales on Saturday 24 May 2025 from 10am-12pm.
If you’d like to join the meeting, please email Rachael via info@behcetsuk.org by 12pm midday on Friday 23 May.
Read Rachael’s Behçet’s story in the ‘Your Behçet’s Stories’ series here.

Northern Ireland Support Group Lunch
2025-05-24 13:00
Trustee Fionnuala McKinley is hosting a support group lunch meeting on Saturday 24 May 2025 at 1pm at the Armagh City Hotel in Armagh, for those affected by Behçet’s in Northern Ireland.
It is free to attend however you will need to buy your own food and drinks.
If you’d like to attend, please email Fionnuala via info@behcetsuk.org by Wednesday 14 May 2025, and please include your mobile number in case we need to get in touch with you on the day.

England Online Support Group Meeting
2025-06-03 19:30 - 21:00
Volunteer Sarah McAllister is hosting an online support group on Zoom on Tuesday 3 June 2025 from 7.30pm-9:00pm for anyone affected by Behçet’s and living in England.

If you are interested in joining or wish to know more, please get in touch with Sarah via info@behcetsuk.org

Behçet's UK Friends and Family Day 2025
2025-06-21 09:30 - 17:00 | Grafham Water Centre, Perry, Huntingdon, Cambridgeshire, PE28 0GW
Click here to find out all the details and reserve your place(s).

Children & Young People Living with Behçet's
2025-07-05 10:00 - 14:00
Children & Young People 2025

England Online Support Group Meeting
2025-07-10 19:30 - 21:00
Volunteer Sarah McAllister is hosting an online support group on Zoom on Thursday, 10 July 2025, from 7.30 pm – 9.00 pm for anyone affected by Behçet’s and living in England.
Meeting topic: Behçet’s & intestines
Overview and discussion about how Behçet’s affects the intestines: complications that may arise, and what treatments are available.
If you are interested in joining or wish to know more, please get in touch with Sarah via info@behcetsuk.org
Note: We do not offer medical advice – this topic is to signpost you to information available online and discuss what works for others to encourage conversations with your own medical team about symptoms and treatment. Any discussions are anecdotal and must be treated as such.

Wales Support Group Brunch
2025-07-19 11:00 - 13:00 | Waterloo Tea Gardens, Wyndham Arcade, The Hayes, Cardiff, CF10 1FH, United Kingdom
Trustee Rachael Humphreys is hosting a support group brunch on Saturday 19 July 2025 at 11am – 1pm at Waterloo Tea Gardens, in Wyndham Arcade in Cardiff, for those affected by Behçet’s in Wales.
It is free to attend however you will need to buy your own food and drinks.
If you’d like to attend, please email Rachael via info@behcetsuk.org, and please include your mobile number in case we need to get in touch with you on the day.

Wales Online Support Group Meeting
2025-09-27 10:00 - 12:00 | Online
Trustee Rachael Humphreys is hosting another Zoom support group meeting for those affected by Behçet’s in Wales on Saturday 27 September 2025 from 10am-12pm.
If you’d like to join the meeting, please email Rachael via info@behcetsuk.org by 12pm midday on Friday 26 September.
Read Rachael’s Behçet’s story in the ‘Your Behçet’s Stories’ series here.

Northern Ireland Support Group Laughter Yoga Meetup
2025-09-27 11:00 - 13:00 | Canal Court Hotel, 29-32 Merchants Quay, Newry, BT35 8HF, United Kingdom
Fionnuala Mc Kinley and the Northern Ireland Support Group are meeting for laughter yoga later this month and invite anyone affected by Behçet’s and living in Northern Ireland to join them.
What
Laughter Yoga followed by tea/coffee, and a sandwich lunch
When
Saturday 27 September 2025 11:00 am – 1:00 pm
Where
Canal Court Hotel, Newry
Cost
£5 to attend, which will cover the cost of the room hire. Behçet’s UK will cover the cost of lunch
How to book
Unfortunately, booking has now closed.
What is Laughter Yoga?
Laughter yoga (Hasya yoga) is a laughter exercise program that emphasizes three elements: laughter & playfulness, yogic breathing exercises, and mindfulness meditation.
At the core of Laughter Yoga is the premise that everyone can and knows how to laugh, regardless of what their mind may say. Participants do not need to have a finely tuned sense of humour, know jokes, or even be happy – laughter yoga invites you to ‘laugh for no reason’, faking it until laughter becomes real, unforced and flowing.
Laughter yoga is an easy way to strengthen all immune functions, bring more oxygen to the body and brain, foster positive feelings, and improve interpersonal skills.

England Online Support Group Meeting
2025-09-30 19:30 - 21:00
Volunteer Sarah McAllister is hosting an online support group on Zoom on Tuesday 30 September 2025, from 7.30 pm – 9.00 pm for anyone affected by Behçet’s and living in England.

Meeting topic: General Support Meeting
Please note a change to the original schedule: this session will now be a general support group meeting, where everyone can chat and ask questions. Sarah will guide the discussion based on your input.
Next meeting: The original topic of genital ulcers will now be covered at the next session. We will send out the invite soon. Sarah would like to hear from anyone who wishes to share their experiences, particularly from male patients. Please contact Sarah via info@behcetsuk.org, and we will pass on your details. Experiences can be shared anonymously if preferred.

If you are interested in joining or wish to know more, please get in touch with Sarah via info@behcetsuk.org

Note: We do not offer medical advice – these meetings are to signpost you to information available online and discuss what works for others to encourage conversations with your own medical team about symptoms and treatment. Any discussions are anecdotal and must be treated as such.

Behçet's UK 2025 Conference & AGM
2025-10-18 09:30 - 16:30 | Penta Hotel, Reading
Click here to find out more and register
