England Online Support Group Meeting (Lunchtime)
2025-10-22 12:00 - 13:30 (Europe/London)
In response to feedback that evening support group meetings don’t work for everyone, our volunteer group leader, Sarah, has scheduled the first England Behçet’s Lunchtime Support Group Zoom on Wednesday, 22 October 2025, 12:00 – 13:30.

We hope this time works for many group members and may also allow some who work during the day to join part of the session during their lunch break.

Evening support group Zoom meetings will continue for those who prefer them. The next evening session will be Monday 10 November 2025, 19:30 – 21:00. More details to follow soon.
Meeting topic: General Support
This session will be a general support group meeting, where everyone can chat and ask questions. Sarah will guide the discussion based on your input.
Note: We do not offer medical advice. This meeting is to signpost you to information available online and discuss what works for others to encourage conversations with your own medical team about symptoms and treatment. Any discussions are anecdotal and must be treated as such.

If you are interested in joining or wish to know more, please get in touch with Sarah via info@behcetsuk.org

Wales Online Support Group Meeting
2025-11-02 10:30 - 12:30
Trustee Rachael Humphreys is hosting another Zoom support group meeting for those affected by Behçet’s in Wales on Sunday 2 November 2025 from 10:30am-12:30pm. Please note that this meeting has been rescheduled from its original date of the 26 October.
If you’d like to join the meeting, please email Rachael via info@behcetsuk.org by 12pm midday on Friday 31 October.
Read Rachael’s Behçet’s story in the ‘Your Behçet’s Stories’ series here.

England Online Behçet's Support Group Meeting
2025-11-10 19:30 - 21:00
Volunteer Sarah McAllister is hosting an online support group on Zoom on Monday 10 November 2025, from 7.30 pm – 9.00 pm for anyone aged 18 or over living in England who is affected by Behçet’s.

Meeting topic: Genital Ulcers
Like Sarah’s previous group meeting on mouth ulcers, genital ulcers are also among the most common symptoms experienced by patients with Behçet’s. Therefore, Sarah thought this would be an ideal topic to focus on at the support group meeting.
How to join

If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:30 am on Monday 10 November 2025.
If you are unable to attend this meeting but would like to receive invitations to future meetings, please complete the online registration form at anytime.
Frequently Asked Questions
If you’d like to learn more about our support groups, please view our Frequently Asked Questions. If you have any other questions, please feel free to email us at info@behcetsuk.org
Remember
Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.
Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.

Parents and Guardians Online Support Group Meeting
2025-11-16 14:00 - 15:30 | Online
Behçet’s UK Trustee, Amanda Moseley, is hosting a Parents and Guardians Online Support Group Zoom on Sunday, 16 November 2025, 14:00 – 15:30.
Parents and guardians of children and young people with Behçet’s face challenges – medical, emotional, and practical – that can sometimes feel overwhelming and isolating.
This support group offers a safe and welcoming space where you can connect with others who understand your journey. Share experiences and ask questions on everything from managing symptoms and treatments to navigating school and daily life.
The group is open to parents and guardians aged 18 or over living in the UK who have a child diagnosed with, or seeking a diagnosis of, Behçet’s.
Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Amanda will guide the discussion based on your input.
How to join
If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:30 a.m. on Friday, 14 November 2025.
If you are unable to attend this meeting but would like to receive invitations to future meetings, please complete the online registration form at any time.
Frequently Asked Questions
If you’d like to learn more about our support groups, please view our Frequently Asked Questions. If you have any other questions, please feel free to email us at info@behcetsuk.org
Remember
Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.
Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.

Men's Online Behçet's Support Group Meeting
2025-11-18 19:30 - 21:00
Behçet’s UK Chair, Tony Thornburn, is hosting the first Men’s Behçet’s Support Group Zoom on Tuesday, 18 November 2025, 19:30 – 21:00.
This group provides a space for men living with Behçet’s to connect, share experiences, and discuss the challenges they face in daily life. Whether it’s managing symptoms, treatment routines, work, or personal goals, group members can exchange practical advice and strategies in a supportive, respectful environment.
The group is open to men aged 18 or over living in the UK who are diagnosed with (or seeking a diagnosis of) Behçet’s.
Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Tony will guide the discussion based on your input.
How to join
If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:30 a.m. on Tuesday, 18 November 2025.
If you are unable to attend this meeting but would like to receive invitations to future meetings, please complete the online registration form at any time.
Frequently Asked Questions
If you’d like to learn more about our support groups, please view our Frequently Asked Questions. If you have any other questions, please feel free to email us at info@behcetsuk.org
Remember
Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.
Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.

Spouse and Partner Online Support Group Meeting
2025-12-01 19:00 - 20:30 | Online
Behçet’s UK Trustee Fionnuala Mc Kinley, is hosting the first online support group for spouses and partners of people living with Behçet’s on Monday 1 December 2025, 19:00 – 20:30.
“When a partner develops a long-term chronic illness like Behçet’s, it affects more than just the person living with the condition. Family, friends, and co-workers may feel the impact, but often the greatest effect is on their spouse or partner.”
Fionnuala McKinley, Behçet’s UK Trustee
This group provides a safe and supportive space for anyone living in the UK whose spouse or partner has Behçet’s to share their thoughts and connect with others in similar situations who understand what they’re going through.
The group is open to people living in the UK (18+) whose spouse or partner has been diagnosed with, or is seeking a diagnosis of, Behçet’s.
Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Fionnuala will guide the discussion based on your input.
How to join
If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:30 a.m. on Monday, 1 December 2025.
If you are unable to attend this meeting but would like to receive invitations to future meetings, please complete the online registration form at any time.
Frequently Asked Questions
If you’d like to learn more about our support groups, please view our Frequently Asked Questions. If you have any other questions, please feel free to email us at info@behcetsuk.org
Remember
Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.
Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.

POSTPONED: Northern Ireland Support Group Christmas Lunch
2025-12-06 12:15 | The Halfway House, 80 Halfway Rd, Banbridge, BT32 4HB
Unfortunately, due to a combination of ill health and busy schedules among the Northern Ireland support group members, Fionnuala has had to reschedule the pre-Christmas meetup, originally scheduled for Saturday 6 December. It will now take place in the New Year.

Save the date of Saturday 24 January 2026 as it will take place then, same time and place. More details to follow in the new year.

Frequently Asked Questions
If you’d like to learn more about our support groups, please view our Frequently Asked Questions. If you have any other questions, please feel free to email us at info@behcetsuk.org
Remember
Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.
Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.

Scotland Online Support Group Meeting
2025-12-09 19:00 - 20:30
Vice-chair Catherine O’Hara is hosting a support group meeting via Zoom on Tuesday 9 December 2025 at 7pm – 8:30pm for any adults affected by Behçet’s and living in Scotland.
Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Catherine will guide the discussion based on your input.
How to join
If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:30 a.m. on Tuesday 9 December 2025.
If you are unable to attend this meeting but would like to receive invitations to future meetings, please complete the online registration form at any time.
Frequently Asked Questions
If you’d like to learn more about our support groups, please view our Frequently Asked Questions. If you have any other questions, please feel free to email us at info@behcetsuk.org
Remember
Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.
Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.

Wales Support Group Christmas Brunch
2025-12-13 11:00 | Bill’s Cardiff Central Restaurant, 27-39 Wyndham Arcade, Cardiff, CF10 1FH
Rachael Humphreys would like to invite you to join her and the Behçet’s Wales Support Group for a pre-Christmas brunch. It’s a wonderful chance to meet up and catch up with everyone over a relaxing brunch. All the details are below.
Date and Time: Saturday, 13 December 2025, 11:00 am
Where: Bill’s Cardiff Central Restaurant, 27-39 Wyndham Arcade, Mill Lane, Cardiff, CF10 1FH
Cost : Free to attend; however, you will need to purchase your own meal and drinks on the day.
RSVP: Please let us know if you can attend by clicking here and completing the online form to reserve your seat by 12:00 pm (midday) on Friday, 5 December 2025.

Frequently Asked Questions
If you’d like to learn more about our support groups, please view our Frequently Asked Questions. If you have any other questions, please feel free to email us at info@behcetsuk.org
Remember
Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.
Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.

England Online Support Group Meeting (Lunchtime)
2025-12-18 12:00 - 13:30 | Online
Volunteer Sarah McAllister is hosting another online LUNCHTIME support group on Zoom on Thursday 18 December 2025, from 12.00 pm (midday) – 1.30pm pm for anyone aged 18 or over living in England who is affected by Behçet’s.

Meeting topic: General Support
This session will be a general support group meeting, where everyone can chat and ask questions. Sarah will guide the discussion based on your input.
How to join

If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:00 am on Thursday 18 December 2025.
If you are unable to attend this meeting but would like to receive invitations to future meetings, please complete the online registration form at any time.
Frequently Asked Questions
If you’d like to learn more about our support groups, please view our Frequently Asked Questions. If you have any other questions, please feel free to email us at info@behcetsuk.org
Remember
Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.
Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.

Northern Ireland Online Support Group Meeting
2026-01-12 19:00 - 20:30 | Online
Behçet’s UK Trustee Fionnuala Mc Kinley, is hosting a support group meeting via Zoom on Monday 12 January 2026 at 7pm – 8:30pm for any adults affected by Behçet’s and living in Northern Ireland or Ireland.
Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Fionnuala will guide the discussion based on your input.
How to join
If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:30 a.m. on Monday 12 January 2026.
If you are unable to attend this meeting but would like to receive invitations to future meetings, please complete the online registration form at any time.
Frequently Asked Questions
If you’d like to learn more about our support groups, please view our Frequently Asked Questions. If you have any other questions, please feel free to email us at info@behcetsuk.org
Remember
Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.
Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.

England Online Behçet’s Support Group Meeting (Evening)
2026-01-19 19:30 - 21:00
Volunteer Sarah McAllister is hosting an online support group on Zoom on Monday 19 January 2026, from 7.30 pm – 9.00 pm for anyone aged 18 or over living in England who is affected by Behçet’s.

Meeting topic: Mental Health
Research shows that people living with long-term health conditions, including Behçet’s, are more likely to experience anxiety, low mood, and other mental health challenges.
With January often being a challenging month for many, and with ‘Blue Monday’ falling on the 19th, Sarah felt it would be appropriate for this meeting to focus on mental health
How to join

If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:30 am on Monday 19 January 2026.
If you are unable to attend this meeting but would like to receive invitations to future meetings, please complete the online registration form at anytime.
Frequently Asked Questions
If you’d like to learn more about our support groups, please view our Frequently Asked Questions. If you have any other questions, please feel free to email us at info@behcetsuk.org
Remember
Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.
Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.

Northern Ireland Support Group Lunch
2026-01-24 12:30 | The Halfway House, 80 Halfway Rd, Banbridge, BT32 4HB
Fionnuala Mc Kinley would love for you to join her and the Behçet’s Northern Ireland Support Group for a meetup over lunch. It’s a great opportunity to meet up, enjoy some good food, and catch up with everyone. All the details are below.
Date and Time
Saturday, 24 January 2026, 12:30 pm
Where
The Halfway House, 80 Halfway Rd, Banbridge BT32 4HB
Cost
Please pay for your own food and drink on the day.
How to attend the lunch
Invitations will be emailed to existing support group members week commencing 5 January 2026.
If you’re not yet a member of the support group, please complete our online form and we’ll make sure you receive an invite.
Frequently Asked Questions
If you’d like to learn more about our support groups, please view our Frequently Asked Questions. If you have any other questions, please feel free to email us at info@behcetsuk.org
Remember
Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.
Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.

Spouses/Partners of people with Behçet's Online Support Group Meeting
2026-01-26 19:00 - 20:30 | Online
Behçet’s UK Trustee Fionnuala Mc Kinley, is hosting an online support group for spouses and partners of people living with Behçet’s on Monday, 26 January 2026, 19:00 – 20:30.
“When a partner develops a long-term chronic illness like Behçet’s, it affects more than just the person living with the condition. Family, friends, and co-workers may feel the impact, but often the greatest effect is on their spouse or partner.”
Fionnuala McKinley, Behçet’s UK Trustee
This group provides a safe and supportive space for anyone living in the UK whose spouse or partner has Behçet’s to share their thoughts and connect with others in similar situations who understand what they’re going through.
The group is open to people living in the UK (18+) whose spouse or partner has been diagnosed with, or is seeking a diagnosis of, Behçet’s.
Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Fionnuala will guide the discussion based on your input.
How to join
If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:30 a.m. on Monday 26 January 2026.
If you are unable to attend this meeting but would like to receive invitations to future meetings, please complete the online registration form at any time.
Frequently Asked Questions
If you’d like to learn more about our support groups, please view our Frequently Asked Questions. If you have any other questions, please feel free to email us at info@behcetsuk.org
Remember
Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.
Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.

Wales Online Support Group Meeting
2026-01-31 10:00 - 12:00
Trustee Rachael Humphreys is hosting another Zoom support group meeting for those affected by Behçet’s in Wales on Saturday 31 January from 10:00am-12:00pm.
The group is open to anyone aged 18 or over living in Wales who is affected by Behçet’s.
Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Rachael will guide the discussion based on your input.
Read Rachael’s Behçet’s story in the ‘Your Behçet’s Stories’ series here.
How to join
If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:30am on Friday 30 January 2026.
If you are unable to attend this meeting but would like to receive invitations to future meetings, please complete the online registration form at any time.
Frequently Asked Questions
If you’d like to learn more about our support groups, please view our Frequently Asked Questions. If you have any other questions, please feel free to email us at info@behcetsuk.org
Remember
Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.
Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.
