The Rare Disease Team at Queen’s University Belfast have launched a COVID-19 survey which can be accessed at the following…
Month: July 2020
Petition to extend the furlough scheme for high-risk people who can’t safely return to work
Those with conditions like Behçet’s shouldn’t have to choose between protecting their health or their income. Please sign and share…
Genetic Alliance Patient Experience Survey
The new ‘Rare Disease Framework’, to replace the current UK Strategy for Rare Diseases, will shortly be launched. We all…
Bike for Behçet’s, Run for the Rare!
From 18th July around 17 people are taking part in a challenge in aid of Behçet’s UK. They will be…